May 2012 LivingWithCMT Community Newsletter
Dear Friends and Family of LivingWithCMT,We are so excited we cannot wait to tell you about how our…See More
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May 2012 LivingWithCMT Community Newsletter
Posted by Ben Munoz on May 25, 2012 at 10:10am 0 Comments 0 Likes
Dear Friends and Family of LivingWithCMT,
We are so excited we cannot wait to tell you about how our organization is growing, so we’ll go straight at it. We are please to tell you that collectively our patient…
Continue
OUR ONLINE PRESENCE IS GROWING!!!
Posted by Armando Abrero on May 21, 2012 at 9:21pm 0 Comments 0 Likes
OUR ONLINE PRESENCE IS GROWING!!!
Check out this video on YouTube: Ben's Friends Twitter-FB Milestones
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Twitter Chat
Started by John "JC" Colyer in General. Last reply by John "JC" Colyer May 18. 2 Replies 0 Likes
Hope everybody is well.Would any of you be interesting in being a part of a twitter chat? It could be a fun way to learn about other communities on BF, share your experiences with a rare disease, tell your story and gain exposure for BF and all of…Continue
What would you do to comfort a sick friend?
Started by Armando Abrero in General. Last reply by Melinda L May 15. 1 Reply 0 Likes
"What would you do to comfort a sick friend?"Aside from the usual bouquet of flowers and basket of fruits, I'd like to hear your suggestions, especially from patients, as you would know from your end what cheers up a sick person.I will be compiling…Continue
life comfort a patient
Started by Ruth L keane in General May 13. 0 Replies 0 Likes
Well when I had foot toe straighten opera I had people be kind no love but when it come some they more then I would cope with it, or get long on your own. What profressionals health people are great doing some things they do good will do a job all…Continue
CMT Patient & Family Conference 2012
Started by Scott Orn in General. Last reply by Scott Orn May 4. 3 Replies 1 Like
So excited to announce the Annual CMT Patient & Family Conference for 2012!CMT Patient &…Continue
Tags: conference, national, support, cmt
Welcome to LivingWithCMT.org!
If you or a loved one has been affected by Charcot Marie Tooth (CMT) also known as Hereditary Motor and Sensory Neuropathy (HMSN), this is the place for you. The purpose of our community is to provide patients, families and friends affected with CMT/HMSN a place to find support, information, and most importantly a place to connect! Please feel free to suggest new ideas, because this is YOUR community.
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ModeratorBen Munoz posted a blog post
May 2012 LivingWithCMT Community Newsletter
Dear Friends and Family of LivingWithCMT,We are so excited we cannot wait to tell you about how our…See More
ModeratorJohn "JC" Colyer commented on John "JC" Colyer's group Affirmations and Quotes
"Don’t base your relationship decisions off of the advice of people who don’t have to…"
Armando Abrero posted a blog postOUR ONLINE PRESENCE IS GROWING!!!
OUR ONLINE PRESENCE IS GROWING!!!Check out this video on YouTube: Ben's Friends Twitter-FB…See More
ModeratorJohn "JC" Colyer replied to John "JC" Colyer's discussion Twitter Chat
"We will be posting tutorial video's to help with twitter, we are…"
ModeratorJohn "JC" Colyer commented on John "JC" Colyer's group Affirmations and Quotes
""If it fails, admit it frankly and try another. But above all, try something.
— Franklin…"
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What would you do to comfort a sick friend?Posted by Armando Abrero on May 9, 2012 |
| 2 |
CMT Patient & Family Conference 2012Posted by Scott Orn on March 24, 2012 |
| 3 |
New measurement tool for clinical trials to help children with Charcot-Marie-Tooth diseaseAdded by Melinda L on May 9, 2012 |
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Share Your NCredible Health Hustle with Nick CannonAdded by Armando Abrero on May 4, 2012 |
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May 2012 LivingWithCMT Community NewsletterAdded by Ben Munoz on May 25, 2012 |
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Charcot Marie Tooth (CMT) - Support Group
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CMT Patient & Family Conference 2012
CMT Patient & Family Conference 2012:So excited to announce the Annual CMT Patient & Family Conference for 2012 on Living With CMT Online Support Group!
CMT Patient & Family Conference on November 10, 2012, from 9am-2pm. The conference, which is the first such event to be held in the Chicagoland area in years, will feature a few of the most prominent CMT clinicians and researchers, including Michael Shy, MD, Steven Scherer, MD, PhD, John Svaren, PhD, Gregory Carter, MD, and Sean McKale, CO.*
This event provides an extremely valuable opportunity to hear from the most prominent minds in the fields of CMT research and treatment. Registration is just $50 per person and includes “Lunch with the Experts,” during which you will have time to talk with the presenters and other leading CMT authorities, including the CMTA’s Advisory Board members, while enjoying a delicious buffet lunch.
Charcot Marie Tooth (CMT) Support Group
New Member Says:
“I try really hard to keep positive, me and my son could have been diagnosed with something worse. I am glad to have found this site, where there are others that share the same genetic disease issues! As I said, I felt isolated and thought that I was the only human living with this very rare disease.”
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12 Jan 2012—ALDSupport—Zack and the DragonHow I Live With Ataxia
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01 Dec 2011—LifewithLupus—Being a Part of the LifeWithLupus.org FamilyWhat is Best of Ben's Friends?
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